Confirmed speakers
Patient Engagement Solutions & Innovations World Congress 2026 Europe
Transforming Care Through Technology, Empathy, and Collaboration
London, United Kingdom
Thursday 26th - Friday 27th March 2026
KEY INDUSTRY EXPERT SPEAKERS 2026
- Lara Bloom, President and CEO, The Ehlers-Danlos Society
- Dr Liz Clark, Visiting Lecturer & Patient Engagement Theme Lead, King’s College London
- Emma Sutcliffe, Founder, ISPEP
- Steve Clark, Founder and Patient Advocate, Strive for Five
- Robert Mitchell-Thain, Chief Executive Officer, PBC Foundation
- Carole Scrafton, Director & Co-Founder, Flutters and Strutters
- Keith Berelowitz, Founder/CEO, pRxEngage Inc
- And much much more...

STEVE CLARK
Founder and Patient Advocate
Steve Clark was diagnosed with stage 4 colorectal cancer in 2013 and has since become an active patient advocate. He is a regular speaker for audiences of patients, healthcare professionals, researchers, and industry representatives as well as volunteering with several charities including being a Campaigns Ambassador for Cancer Research UK. Steve is a patient representative to several studies and study groups and has been co-author on a number of papers. In 2017 he set up www.StriveForFive.org, a not-for-profit organization with the mission to give hope to fellow patients with stage 4 cancer and to advocate for improved care for those with advanced cancer. He is a business and marketing consultant for the pharmaceutical industry with Redwood Brand Curators and has worked in UK and global pharma for over 35 years in business management and global marketing. Steve is a former Chairman of the Pharmaceutical Marketing Society and was awarded Healthcare Communications Advocate by Communiqué.

Emma Sutcliffe
Global Patient Officer
Biopharma, where she leads a dedicated team of Global Patient Directors and is responsible for continuously improving and inspiring excellence in patient engagement practices across the entire organization including a patient champion network of 180 colleagues working with almost 300 patient organizations. As a Medical Biochemist and Psychotherapist, Emma has dedicated her career to amplifying the patient voice in the research and development of medicines and creating patient solutions; accordingly, Emma is one of the most frequently published and awarded leaders in the sector.

Dr Liz Clarke
Visiting Lecturer and Patient Engagement Theme Lead
Centre for Pharmaceutical Medicines Research, Kings College London

Dr Liz Clarke
Visiting Lecturer and Patient Engagement Theme Lead
Liz Clark is Visiting Lecturer and Patient Engagement Theme Lead at the Centre for Pharmaceutical Medicines Research within the Institute of Pharmaceutical Science, School of Cancer & Pharmaceutical Sciences at Kings College London Following Medical Qualification and a short period in clinical medicine, Liz spent 28 years working in pharma. Her career encompassed a variety of roles in both commercial and scientific functions, predominantly in Medical Affairs and most recently in Patient Engagement. She left her final Industry role as Vice-President of Medical Affairs at Norgine Ltd. in 2021 and now undertakes a wide-ranging portfolio of activity as an independent pharmaceutical physician. This comprises her role at Kings, patient engagement consultancy, delivery of training and coaching and as one of three Appraisal Leads and Educational Supervisor for the Faculty of Pharmaceutical Medicine. She has recently led the formation of a working group on patient and community engagement at FPM. Her work in patient engagement was recognised in the WEGO Awards 2021 where she was a finalist in the ‘Champion for Patient Engagement’ Category. Liz’s research interests lie in the pragmatic involvement of people affected by health conditions in all aspects of the development and use of medicines, devices and other healthcare interventions, and sharing of best practice in this field. In addition to lecturing and supervising dissertations on the pharmaceutical medicine MSc courses, Liz is in the process of developing stakeholder networks to promote partnership working with patients and communities in medicines development and healthcare both within the Centre for Pharmaceutical Medicines Research at Kings and in collaboration with pharma and the broader stakeholder community.

Robert Mitchell-Thain
CEO
Drawn into the world of PBC with his mother's diagnosis in 1994, Robert has, in one way or another, been involved in PBC advocacy since even before the PBC Foundation was founded in 1996. An experienced and powerful patient advocate, Robert's specialist subject is listening to the patient, and using the patient experience to improve the patient experience. An international leader, presenter, innovator, academic, committee member and author on a number of topics, his driver is to ensure the patient voice, and experience, is front and centre of every potential solution to the challenges they face. An agent for change, he has led various campaigns and innovations to improve the PBC patients' quality of life on a multinational stage.

Keith Berelowitz
Founder/CEO
Keith Berelowitz founded pRxEngage to genuinely engage patients in clinical trials. With over two decades of experience in clinical research, patient engagement, and health technology, Keith
understands that patients are vital partners, not just participants.
At pRxEngage, we use smart technology and fresh thinking to make it easier for patients to
connect with and stay involved in clinical trials. Our focus is on building strong, lasting
connections with patients from the outset, ensuring their continued participation. This
consistent engagement is key to successful research.
Keith’s broad experience includes leading operations and commercial strategy at a UK leading
full-service CRO, where his focus on patient connection helped achieve top enrolment. As Chair
of the Fulham Research Ethics Committee, he gains a different, equally important, perspective,
which helps him create practical, innovative solutions for trials and the people in them. His work
with pRxEngage is all about delivering effective, cost-efficient, and ethical research by truly
understanding what patients need through direct and ongoing connection.

CAROLE SCRAFTON
CEO & Co-Founder Patient Advocacy Organisation
Carole is a patient with chronic and genetic rare disease, Patient Partner, Expert Patient, Patient Speaker, Author and Researcher. She is the CEO & Co-founder of FibroFlutters Patient Advocacy Organisation for chronic / rare illnesses. Helping to develop, nurture and advocate for a multidisciplinary approach to all aspects of medical healthcare so that chronic illness & rare disease patients can receive the type of care and treatments that they need. Carole utilises varying social media platforms to support people with Chronic illness & Rare Disease, #notjustpatients, and with a multi-stakeholder following. A network used for raising disease awareness and sharing as much up to date information. Carole also advocates for patientcentricity, especially patient engagement best practices and the need for patients to be included within research at early development / preclinical phases. She recognises the need to help educate patients about clinical trials and the reason why they should get involved. Recently as a Patient, and with FibroFlutters, was a team member of an initiative to create: ‘How-To guide’. How to implement Patient Engagement into Early Development and Preclinical phases with Patients Focused Medicines Development.

Senior Representative
Director of Patient Advocacy
Lisbeth Snede is the President of PiCC United, a leading organization that promotes patient engagement and advocacy in healthcare. With over 20 years of experience, Lisbeth is dedicated to fostering partnerships between patients, healthcare professionals and industry leaders, believing that patients should be recognized as experts in their care and included in decision-making. She is also
passionate about promoting diversity in healthcare and strives for inclusion and equal access for all patients.
Lisbeth is a passionate advocate and has played a key role in global initiatives including EUPATI. As a speaker and educator, she leads discussions on digital transformation, AI and methodology development in patient engagement. In addition to her work with PiCC United, Lisbeth is a mentor for EIT Health and co-leader of the EU-X-CT project to improve access to clinical trials across Europe. She sits on the steering committee for Shared Commitment to Public Involvement in Denmark, chairs the EUPATI Alumni Network and holds several board positions in patient organizations. Lisbeth is a dynamic leader committed to reshaping healthcare through collaboration, innovation and patient empowerment.
