Agenda - Day 2
Patient Engagement Solutions & Innovations World Congress 2026 Europe
Transforming Care Through Technology, Empathy, and Collaboration.
London, United Kingdom
Day 2 - Friday 27th March 2026
ENSURING EQUITY, TRUST & ACCESSIBILITY IN ENGAGEMENT INNOVATION
- What specific design principles can be implemented to ensure that digital health platforms and tools are truly inclusive and cater to a diverse user base?
- Methods to address barriers like varying digital literacy, language differences, and cultural nuances.
- Partnership opportunities with community organizations, non-profits, and local leaders to expand access in underrepresented populations.
- Methodologies and metrics for evaluating engagement programs to ensure equitable outcomes and reduce health disparities.
Moderator:
Panellists:
- Highlight how stigma, judgement and blame in conditions such as COPD, asthma, transplant, and neonatology create barriers to care, delay diagnosis and worsen health outcomes.
- Using insights from the Chiesi Look Beyond the Bias campaign and real patient stories demonstrating- the consequences of bias seen in continued deprioritisation within UK healthcare systems and policy structure- the human impact of bias and the risk of silence.
Harriet Lewis, Senior Director, Public Affairs & Communications, Chiesi UK
- How MSIF adapts and translates global resources through the MS Resource Hub to close topic and language gaps.
- How global datasets, including the Atlas of MS and new evidence on diagnosis, guide advocacy for early and accurate diagnosis.
- How mentoring, small grants, and shared case studies strengthen emerging MS organisations in Latin America, Africa, and the MENA region.
- Design principles that support inclusion: co-creation, clear language, multilingual materials, and formats that work in low-bandwidth settings.
Dr. Lydia E Makaroff, Chief Executive, Multiple Sclerosis International Federation
- Discussion points to follow
John Rayner, Senior Director, EMEA Region, HIMSS
PATIENT ENGAGEMENT SOLUTIONS IN CLINICAL TRIALS
- How can engagement be redefined as a strategic driver of recruitment and retention in healthcare and pharma?
- What digital and cultural innovations most effectively sustain workforce wellbeing and motivation?
- How can leadership and employee experience be aligned to mission and patient impact?
- What practical strategies bridge the gap between employee voice, inclusion, and operational excellence?
- What role do AI chatbots or virtual assistants play in improving patient communication and adherence?
- How can remote monitoring and decentralized trial platforms balance convenience with data accuracy and compliance?
- How might continuous feedback loops between patients and researchers transform protocol design and responsiveness?
- Which metrics best capture meaningful engagement in clinical research?
- How can participant-reported outcomes (PROs) be used to refine study protocols and improve real-world relevance?
- How does strong patient engagement contribute to faster approvals and more reliable study results?
- How can sponsors and CROs demonstrate the ROI of patient engagement initiatives in trials?
Keith Berelowitz, Founder/CEO, pRxEngage Inc
ENHANCING COMMUNICATION AND COLLABORATION
- How can digital platforms improve clarity and timeliness in provider–patient communication?
- What strategies can ensure that technology enhances human empathy in care interactions?
- How can clinicians be effectively trained to use digital communication tools while maintaining a personal connection with patients?
- What role does real-time data sharing play in empowering patients to take a more active role in their healthcare decision-making?
Lara Bloom, President and CEO, The Ehlers-Danlos Society
- How can healthcare systems integrate families and caregivers into digital care plans while protecting patient privacy?
- What digital solutions best support collaboration between patients, caregivers, and clinical teams?
- How can caregivers’ feedback and experiences be incorporated to enhance care coordination and patient outcomes?
- Technological approaches alleviating caregiver burden while strengthening their role in ongoing patient support.
- Insight into how culturally sensitive and multilingual communication tools can reduce disparities in patient engagement?
- Effective strategies for leveraging social media and online communities to foster patient-to-patient support.
- How can healthcare organizations use patient feedback from online platforms to refine care delivery and experience?
- What safeguards are needed to ensure authenticity, trust, and accuracy in digital patient communities?
- How can healthcare organizations, Pharma and technology vendors align with HIPAA, GDPR, and other global privacy regulations while fostering innovation?
- Most effective methods for communicating data usage and obtaining informed patient consent in digital health.
- How can we ensure AI-driven recommendations and decision-support systems are transparent, unbiased, and ethical?
- Trends that will shape engagement leadership in the coming decade.
- Evolving role of pharmaceutical and healthcare companies in a data-literate patient environment.
- Emerging technologies that will create a competitive advantage.
- How we can maintain a human-centered approach to engagement?
